Our bags are packed and I think we are about as ready as we're ever going to be. Today was great. We got to take a tour of the hospital to see all of the different places we will be throughout our stay. Jack got to meet Lego Man and they gave him a really cool box of Jake and the Neverland Pirates Lego Duplos and a cool lego picture frame for his picture with Lego Man. He was SUPER brave for all of his pre-op testing. He only cried once and that was for the awful blood work! All of the nurses and doctors that we met were wonderful and treated Jack like he was the ONLY kid on the planet! He loved all of the attention! Once we were done there we came home to spend one last afternoon with brother before we have to be away from him for a little while. Now Jack is out on the golf cart with his daddy, Harrison is asleep for the night, and I am taking a break from packing to get all of my last pre-fontan thoughts out.
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I think I should tell you guys that I am not just blogging for you. I DO want to update all of Jack's amazing prayer warriors but I also blog for Jack and for us. After Jack's first surgery I made him a Mixbook with all of the different pictures of him and included all of my blogs. That way when he's older he can go back and read all about his surgeries and all of the things that happened to him.
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So here is how tomorrow will go...
We will arrive at Children's at 6am and check in. They will take Jack back to a pre-op room where we will meet with his surgeon,anesthesiologist, and other doctors to go over what all they will do. We already know most of it and got a chance to ask question today but tomorrow is a one-more-time, just-in-case kind of deal. In the meantime he will get a dose of versed to make him loopy so that he won't mind going with the doctors when its time to go back. At around 7:00 they'll let our family flood his room to give hugs and kisses and say see-you-later. Then they will allow Josh and I to walk him to the OR doors. Then we have to say our own see-you-laters. (Prayers for peace for mom and dad during that time. That is the hardest part.) Once they're back there they will put Jack under using a mask. He will experience no pain at all. Once he's under then they will start to run his lines and get him prepped. Prep takes around an hour. Once they're ready to begin they will call us and let us know. We will be in the waiting room with our family and friends. I will post and let everyone know when the call comes. The second call will come when they're ready to put Jack onto bypass. The goal is for him to stay on bypass for 45 minutes or less but it could take up to an hour. We're praying that they don't have any bleeds (like last time) that would cause him to have to stay on bypass longer than necessary. We'll get a third call when they're ready to take him off and start his heart back up. They'll call once more when the surgery is over and they are ready to close him up. Closing up can take hours because they will be sewing layers together. Once Dr. Dabal is done he will come out and meet with Josh and I and tell us about the surgery. When Jack is done they will move him to his room in the CICU. Once he is all set up in his room Josh and I will be able to see him. They told us today that we should expect for him to be intubated and sedated for most, if not all of the first day. They will attempt to extubatne him either tomorrow night or Friday morning. Please pray for his saturations to SOAR so that he can breathe on his own. This was or biggest challenge last time around but we are believing fully for a better outcome this time around.
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No one will be allowed to see Jack tomorrow after surgery except for me and Josh. This is for his safety as he will be in a very critical state. Once he has had time to be taken off the vent and woken up we will allow our immediate family members to come back and see him. They told us to expect to be there for at least a week but not to be surprised if we stay longer than that. In our experience anything less than a month is a blessing so we will just take it a day at a time.
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We are praying and believing for a miracle. We trust God to provide Jack will an exceptional surgery tomorrow and an amazing and quick recovery. Please pray with us specifically for those things. Our faith is in a God who can move mountains. All glory and honor and praise to Him regardless of what lies ahead for us.
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When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. -Isaiah 43:2
Wednesday, May 25, 2016
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